I cant tell you what tomorrow will bring
I cant tell you what tomorrow will bring, I cant tell you what today will bring.
Matt wakes up this morning and he does not say a word I great him as I always do, "Good morning buddy would you like your breakfast?" knowing of course he would he loves food.
I go to get his and Lokis breakfast and show him the pills he is taking now and tell him what they are and what they are for, and get him to take them all the Anti-seizure medication, the Thyroid medication and the Vitamin D3 that we just started.
After I make sure he takes them all I give him cereal a nice big bowl of it and he takes it but I can tell he is a little out of it, I tell him "buddy you might want to eat it in your room so the cats do bug you." He chose to sit in the living room.
Breakfast went well and I was doing my morning things when he came to me just standing like he wants say something, "Whats up bud?" I say and he replys "I (long pause) have (again long pause) too." then walks away I go to make him a tea and then went to check on him and he was all snuggled in bed like to go back to sleep.
About ten minutes later Matt walked into the room and Mike said "Good morning Matt" and he said with a smile on his face and he said "morning" and It was a good moment.
Then he follows me to the living room and asks " Breakfast?" I remind him of giving him the medication and the big bowl of cereal, he seems a little confused but he says "I know" and I walk with him and he stops at the door way and looks at me so I go with him, "whats up bud?" I ask, He said something but I couldnt hear him and ask "what hun?" And he said "the Bowl?" "You mean your cereal bowl?" I ask and he says "Yes", "Oh hun you already had breakfast." I tell him.
A snack might help I think to myself as I get him some cheese, so happy is he to have some cheese and in a few more minutes comes back looking for Breakfast.
How do you convice someone they have already had something they dont remember having? I dont know and this went on all day he had a snack in the morning the cheese and had his lunch which he again did not remember having and a snack before dinner when he again said "Yes I had chips but I am still waiting for my breakfast." I again explain to him that he has already had his breakfast and it was getting close to dinner.
For the rest of the day he became very confused and just hung out with me and then for dinner I thought I am just going to give him a bowl of cereal and see if this helps and after dinner he stopped ask at least for now for his breakfast and decided to go and meditate in his room for awhile it is almost bed time now and I will be going to give him his night medication and tuck him in and make sure he is already.
I cant tell you what tomorrow will bring, I couldnt tell you that this is how this day would have been.
It isnt always easy to have days like these but I am grateful he is alive and at least able to say a few words.
Gratitude can help out a lot in these stages.
<3 Joan Nielsen
P.s. If you are wanting to donate to help us help Matt you can here
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