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Are you okay Matt?

A common question asked around our house.

If we hear a bang.

If we haven't heard from him in awhile.

If he is in the tub and we are just checking on him.

Anytime we feel we need to make sure he is okay.

Most times we get I am fine, I am okay, or any form of that. Sometimes in a good mood humoring us sometimes in a not so good mood getting upset with our concern, but he usually answers.

But what about the times he doesn't answer?

Yes usually the number one time he doesn't answer is due to seizures and yes we run to assist. Other times are do to him sleeping and unaware we are even talking to him.

This even while Matt was having a bath something he has done many times by himself it began like any other I help him with his water and he gets in the water and I leave him for a few moments. I return only a few minutes later to find he has turned up the water to all hot, to hot for him so I remind him that it will be to hot and will burn him and to let me adjust the water levels, I again leave to finish making my dinner.

With in a few more minutes I send his sister in to check on him and she says he is sitting on the side of the tub I go in and check make sure it is not to hot but he is sitting there so he can wash up, everything seems good I go back to my dinner and serve myself.

This was not even 15 minutes and when I was taking my dinner to eat it I say to Matt "are you okay Matt"? I hear nothing, I quickly put my food down and say again "are you okay Matt"? Still nothing I head to the bathroom and say again "are you okay Matt? I open the door and scared him as I did, there is Matt standing still all wet, scared, totally out of it, a drop seizure happening I quickly get him out and to bed, put his jammies on and tucked into bed before he even begins to come back to us.

Yes these moments are the scariest when you hear nothing from him.

I wish there was a way to know ahead of time that this was about to happen, I wish there was a sign, I wish there was a warning, I wish there was a cure but most of all I wish he would never have another one ever again.

Life with an illness like this is a scary process, you never know what any day will bring you.

I am so glad he was out of the tub when it happened, I am so glad it was a drop seizure and not a grandmal in the bath tub, been there done that.

Are you okay Matt is something we say a lot around here for many reasons.

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