Who is your support

Who is your support?

There isnt alot in the way of support for caregivers of a child with disabilities, no support for parents, siblings to go to for help on understanding or just to share stories with.

No one to talk about your concerns, your fears or the difficulties, confusion, the outbursts, the frustrations or the changes in moods.

There us no support, no training, no there isnt anything that can help you at least that is what it feels like.

No play dates, no weekends away, no one to help support, no extra money to help with medication, support devices, or programs that might be availableand no one to pitch in.

Support usually comes in the way of a partner or a close friend but most of the time you are on your own.

I know for myself it isnt easy to talk to anyone other then Mike and my children its difficult to find someone who would be concerned or wanting to hear. Most people have their own thing going on.

Also not many would understand life with a special needs child.

So we tend to keep our supports close to us and try not to over use them in fear we will burn them out.

We usually however go it alone not sure who we can talk to about what, is there others out there that might be able to help? Is there support groups? Is there some information that might make it easier for us? Is there just someone I can voice my concerns? Someone I can talk to? Never knowing who we can trust.

Somedays are harder then other, somedays all you want to do is cry, somedays all you want to do is hide away in a warm blanket, somedays all you want is for someone to ask you how YOU are doing? What can I do to help? 

Your support has to be someone you can trust not only with the crazy things you might say in a moment of despiration but also with your disabled child or yourself. Your support is someone who is a good listener, accepts you unconditionally and whomis willing to help out always especially when you need them most.

It isnt easy to find support groups in fact I dont think I have found any as of yet for parents of special needs or illness.

So make sure to find some special people to help you out.

For me I know what its like both ways to feel like you have no one to talk to and having others their to help you out its better when you have others.

I started a support group for all of us on facebook feel free to come join 

https://m.facebook.com/story.php?story_fbid=1074649592721511&id=983266985193106

Joan