And just when you feel you were getting somewhere

I am going to write a double blog post on this subject but two different views, one here and one on lifeshift

that I will call I should be used to this

We have been doing so well with Matt in the past while he has been remembering things he hasnt remembered in awhile, he has been happy and playing with the kids and it seems really enjoying himself.

Now I know more then anyone how fast this can all change, I know that he can change in an instant actually we all can and we all do and this is no different it was just like that after his little sisters wedding he started to fixate on his future wife, girlfriend and life and of course due to this he ended up having a bad seizure.

It was quite a long time ago that I realized that stress has a really bad effect on Matt and his seizures and if I can keep him from focusing on things he would probably have none but I dont know that for a fact as we never get him there.

So Matt had a bad seizure and when he has a bad seizure he usually looses memories and this is what happened he forgot all about his sisters wedding missed the whole thing,

I was getting him ready for the day and was changing his blankets which needed to be washed due to the seizure and when I placed out his cloths for bed time he asked me "is this for Tegans wedding" I said "No Tegans wedding was last weekend do you not remember?" I just get a hmmm.

Is not able to say much but had forgotten Tegans wedding something I should be used to well not that he missed he wedding but that he has loss of memories and can not speak very well.

The next morning he was still on about us going to Tegans wedding or us going out somewhere and I told him we were not planning on going anywhere and he says fine then I guess we are not going.

Yes i should be used to all this but I am not sure I will ever be it isnt always easy to go through the memory loss the thoughts that they may have of you keeping them from something important but in fact I dont think that I can this is a part that I really wish I could do more for him, I wish I could figure out how to stop him from focusing so very much, how can I help him from loosing these memories?

I realize I cant. I realize that I can not do anything about this part but try to be patent, kind and loving and be very grateful for all the times he does remember things, his memories can come back and who knows what the future holds and just keep pushing forward.

<3 Joan Nielsen